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Chronic Lyme Disease! This Site Is Dedicated To Leslie Wermers

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Forum

Johnnylight

Don't Be Fooled By Seronegative Test 7 Replies

Many have been told they don't have Lyme anymore when in fact they still do. Stopping treatments before the Lyme is fully eradicated could be a big mistake that's why we need more Lyme experts that...

Started by Johnnylight. Last reply by Johnnylight Sep 25.

Johnnylight

The Dark Side Of Lyme

Great Coverage from Boston channel 5 WCVB http://www.thebostonchannel.com/video/20176

Started by Johnnylight Jul 26.

Johnnylight

Chronicles 1 Reply

Ticked: Segment One http://www.thebostonchannel.com/video/1924519 Segment Two http://www.thebostonchannel.com/video/1924521 Segment Three http://www.thebostonchannel.com/video/19245 Segment Four...

Started by Johnnylight. Last reply by thereishope Apr 22.

Johnnylight

Shadowland of the Mind (Neurological Lyme Disease , Part One) 1 Reply

Published on Psychology Today (http://www.psychologytoday.com) Pamela Weintraub is a literary and investigative science journalist. She is a senior editor at Discover magazine and the author of ...

Started by Johnnylight. Last reply by Cobweb Sep 8.

Johnnylight

Bryan Rosner's Videos of the International Lyme and Associated Diseases Society 2008 Conference--Physicians Please See and Come to the 2009 ILADS Conference in Wash DC in October

http://lymecommunity.com/forums/ubbthreads.php/ubb this is a very informative conference. I hope patients will encourage their doctors and their nurses to attend. It will provide you with opportuni...

Started by Johnnylight Jul 16.

Johnnylight

Drs. Brian Fallon and Daniel Cameron publish trials validating the severity of chronic Lyme disease

http://www.ncbi.nlm.nih.gov/pubmed/19013025?ordina of the hypothesis: If the QOL of life for these patients is as poor as for patients with other serious chronic diseases, their symptoms need to be...

Started by Johnnylight Jul 16.

Johnnylight

Outline of an Epidemic 3 Replies

According to statistics provided by the Lyme Disease Foundation, a national non-profit organization based in Connecticut, Lyme disease accounts for 90 percent of vector-borne infections in the ...

Started by Johnnylight. Last reply by Susan C May 18.

Johnnylight

Fibromyalgia and Chronic Fatigue 19 Replies

I am hearing more and more cases of Chronic Fatigue and Fibromyalgia being finally diagnosed as Lyme Disease. I for one was misdiagnosed with CFS and i would like to hear others put there story her...

Started by Johnnylight. Last reply by Johnnylight Sep 13.

The Dirty Truth About Lyme Disease Research

This is a Real Good Read!


http://www.angelfire.com

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Evan's Gate


Blog Posts

Johnnylight

Lonely Lyme

Posted by Johnnylight on September 22, 2009 at 3:00pm — 5 Comments

Johnnylight

Late Stage Lyme Patient Information

Posted by Johnnylight on November 19, 2008 at 6:30pm — 1 Comment

Johnnylight

LIVING WITH LYME

Posted by Johnnylight on November 29, 2008 at 5:56pm

Nathan Johnson

Doctors?

Posted by Nathan Johnson on September 19, 2009 at 1:11pm — 5 Comments

Johnnylight

It's Not All In My Head It's All In my Body

Posted by Johnnylight on November 15, 2008 at 6:30pm — 1 Comment

Johnnylight

Rapid Swine Flu Test Misses Many Infections

Posted by Johnnylight on September 1, 2009 at 8:30am — 2 Comments

Johnnylight

Another Lyme Tragedy

Posted by Johnnylight on April 25, 2009 at 8:30am

Tamara Riggs

My Lyme Story

Posted by Tamara Riggs on January 12, 2009 at 8:43am — 1 Comment

Tamara Riggs

Let the Government Know What You Want, Lymies!

Posted by Tamara Riggs on February 18, 2009 at 6:52am

 
 

About

Johnnylight Johnnylight created this Ning Network.

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Latest Activity

12 hours ago
Johnnylight Happy Thanksgiving!
12 hours ago
Nani Luculescu Hi, my dad was infected with Lyme over 2 years ago while on a fishing trip to Mammoth, CA. I've been reaching out to Lymies 4 support. =)
13 hours ago
Don Acorn gave a gift to Shantiann Daya
13 hours ago
19 hours ago
Nani Luculescu is now a member of Lymies "R" Us
19 hours ago
Johnnylight added a group
on Monday
Yeah Kelly, i had muscle cramps in my calf the other day now it's all gone but Lyme will make you crazy because of what it does to us. My legs vibrate but not as bad as they did this time last year, the treatments do work but it is a long, long pr...
on Monday

Saturday Night Live

Dr. Burrascano Guidelines

Notes

In Loving Memory

Grace Amond, founder Grace's Hot Dogs, dies at 76

Eva Haughie founder and President of EMPIRE STATE LYME DISEASE ASSOCIATION,INC
just lost her Mom and we wish her our condolences as we keep her in our thoughts and Prayers in this time of loss.



Continue

Created by Johnnylight Oct 8, 2009 at 10:53am. Last updated by Johnnylight Oct 8.

Abx Charts

This is a awesome chart to help you understand abx effectiveness against Lyme.



http://dailystrength.org/treatments/support-groups/Lyme-Disease Continue

Created by Johnnylight Apr 2, 2009 at 4:57pm. Last updated by Johnnylight Apr 2.

IDSA Letter

A Word To The IDSA From A Lyme Patient
 
Dear Sirs,
 
I have been suffering with CHRONIC LYME DISEASE for about 8 years now and I just want to tell you how awful this disease really is. No matter what you say you can't explain away all
Continue

Created by Johnnylight Apr 2, 2009 at 4:18pm. Last updated by Johnnylight Apr 2.

Lyme Symptom Change

AFTER 16 MONTHS OF COMBO TREATMENTS

BEFORE                                         AFTER

Double vision: Severe                        Very Light

Fatigue: Extremely Severe                    Medium to Severe

Vibrations: Extremely Severe                 Medium to Severe

Sore throat: Medium to Severe                Light

Joint Pain: Medium to Severe                 Light to Medium

Muscle Cramps: Medium to Severe           … Continue

Created by Johnnylight Mar 31, 2009 at 9:16am. Last updated by Johnnylight Apr 2.

Symptom List

Symptoms List

Musculoskeletal System
Joint pain or swelling or tenderness
Stiffness of joints, back, neck
Muscle pain or cramps
Bone pain

Neurological System
Tremors or unexplained shaking (especially at night)
Burning or stabbing sensations in the body
Weakness or partial paralysis/stroke-like symptoms
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motio… Continue

Created by Johnnylight Mar 12, 2009 at 5:16pm. Last updated by Johnnylight Mar 12.

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